Are you or a family member affected by PTEN hamartoma tumour syndrome (PHTS)?* Are you interested in taking part in a 60-minute phone call to share your experience and drive forward research? A patient unmet need survey is running to gather the day-to-day experiences of people living with PHTS, and how their condition is treated and managed. The study is running in the Unit ...
Newsletter Launch - September 2017
20 September 2017
The PTEN Research Foundation is delighted to announce the launch of its newsletter. In September's issue, you can read our recent news, including details of a new clinical trial testing a potential treatment for PHTS.
Presentations from “Cowden Syndrome and Other PTEN-Related Disorders: A Patient-Oriented Symposium”
15 June 2017
On June 10th, Dr Maria Whitehead, Director of Research for the PTEN Research Foundation, presented at the “Cowden Syndrome and Other PTEN-Related Disorders: A Patient-Oriented Symposium” at The Ohio State University Wexner Medical Centre. Please follow the link to view all of the presentations from the day which include: Partnering with Your New or Current Primary Care Phy ...