For patients

Are you or a family member affected by PTEN hamartoma tumour syndrome (PHTS)?* Are you interested in taking part in a 60-minute phone call to share your experience and drive forward research? A patient unmet need survey is running to gather the day-to-day experiences of people living with PHTS, and how their condition is treated and managed.  The study is running in the Unit ...

The PTEN Research Foundation is delighted to announce the launch of its newsletter. In September's issue, you can read our recent news, including details of a new clinical trial testing a potential treatment for PHTS.

On June 10th, Dr Maria Whitehead, Director of Research for the PTEN Research Foundation, presented at the “Cowden Syndrome and Other PTEN-Related Disorders: A Patient-Oriented Symposium” at The Ohio State University Wexner Medical Centre. Please follow the link to view all of the presentations from the day which include: Partnering with Your New or Current Primary Care Phy ...