Supporting the professional community

The Foundation aims to support the professional community around PHTS, including clinicians, medical researchers and clinical support teams, with the overall aim of improving the lives of people with PHTS. More specifically we aim to:

  • Facilitate networking and encourage groups of clinicians and researchers to work collectively with their medical institutions
  • Facilitate access to leading research in order to best advise, diagnose and treat PHTS patients in their country
  • Invite this community to propose research projects to the Foundation

Professionals network

View and/or join a network of healthcare professionals with interest and expertise in PHTS

Selected publications

Published content providing useful background information on PHTS


Professionals' events to promote understanding, collaboration and networking.