Patient organisations are a fundamental force in motivating, directing, and supporting efforts in the search for better treatments and care.
Please find below links to PHTS patient organisations we are aware of currently around the world. If you would like your group to be featured, please get in touch at firstname.lastname@example.org.
PTEN UKI (UK and Ireland)
PTEN Italia (Italy)
The PTEN Hamartoma Tumor Syndrome Foundation was founded with a mission to educate about PTEN syndromes, provide financial support to patients, support research, and to promote awareness.
PTEN World is for people with Cowden Syndrome/BRRS and their families and medical providers. Members may support each other on their profiles and in the discussion forum.