About PTEN Research

PTEN Research launched in early 2017. Our mission is to fund research that will lead to new and better treatments for PHTS. We aim to develop treatments that can relieve the condition’s various symptoms and possibly even reverse or prevent them from occurring in the first place. The pursuit of this goal will also lead to improvements in the care of people with PHTS.

We hope to act as a catalyst to improve the understanding of PHTS by encouraging collaboration and the sharing of knowledge and results. We want to bring the world’s leading experts together to find new solutions and break down barriers to working together to accelerate research. By working closely with the whole PHTS community and the pharmaceutical industry, we believe it is possible to achieve our mission of a targeted therapy for PHTS in the next 10 years.

Our progress so far

We are committed to being transparent about our progress. We are guided by an external Scientific Advisory Board made up of clinical and research experts. Each year we publish our annual report on our website.



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